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Lymeangl 01/15/2012 5:56:00 AM
Debbie....I have never had a tick on me, no rash, etc., but we figured I got it from my ex hubby who was a hunter....as we know it is in semen, saliva, vaginal fluid, tear ducts, mother's breast milk and worse our blood supply....A mother cAn have Lyme and not know it and pass it on to their fetus.......
The 2nd and 3rd infection came from mosquitoe bites I got right here in Arizona.....with the 2nd and 3rd infections I got Babesia and Bartonella...
Those that don't believe how horrific and deadly Lyme and Co can be, all we can do is pray for them....
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Tickscorn(Debbie T) 01/14/2012 10:13:00 AM
Comparison Lyme Disease and Co-infections Symptom Chart
www.lyme-symptoms.com
Comparision of Coinfections and Lyme disease. Lyme disease, Bartonella, Mycoplasma, Babesia, Powassen virus,Ehrichilia, tick paralysis, Rocky Mountain spotted fever,Q Fever, Relapsing fever, Tularimia and Stari are compared to Lyme disease. Lyme disease and the co infections are caused by a tick bit...
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Lissmth 01/14/2012 12:47:00 AM
"Both the Centers for Disease Control and Prevention and the Infectious Disease Society of America contend that, if properly diagnosed, early-stage Lyme disease is easily treatable with a course of up to one month of antibiotics."
Umm ... what about those of us who never got a single day of antibiotics let alone a month of them?
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Lymeangl 01/14/2012 12:35:00 AM
I agree Debbie....don't you just love the Monday morning quarterbacks when it comes to Lyme disease and its co-infections....I stop arguing with ignorance, which this poster thinks they know about Lyme & company.......NOT If they were right, they would be a very very RICH person.
Sounds to me like a flack from IDSA!!
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Tickscorn(Debbie T) 01/14/2012 12:09:00 AM
Wow! What an insanely biased article!!! I could call you on many of your statements, but, I'm too exhausted with late stage Lyme Disease and Rocky Mountain Spotted Fever. I seriously doubt you would write an article about hundreds of thousands of people who get misdiagnosed for many years with everything from "in your head" to IBS and everything in between. Or an article about how many have gotten better with antibiotic combinations, along with good supplements and diet change. I'm curious, as to how much the IDSA paid you to write this article that was obviously written to slam the "Lyme-ites" (did you make up that name?), and the doctors who have the cajones to try and treat this monster of a cocktail of infectious diseases. Your words are quite condescending, Mr. Rubin.
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01/14/2012 12:05:00 AM
http://www.forbes.com/sites/alexknapp/2012/01/10/multiple-sclerosis-may-be-caused-by-a-virus/
So you see---instead of telling the truth of the gene swapping infectious organisms they are going to move for what it most profitable...Chemo to get the immune sucking virus' out of your brains, instead of the antibiotics and stem cells that are needed. Because like HIV, antivirals will do nothing....That's why all the AIDS pts. used to die and now they live, because they are afforded all the antibiotics they need to kill the infections in the depressed immune system. HIV, HPV, XMRV never killed anyone...The immune suppression they gave US is what kills. Which is why it has taken over 35 yrs. to tell the truth that we all have EBV and HV's and we must treat the gene swapping proteins to stop the syndromes with antibiotics to kill the bacteria the virus' ride in on and stem cells to turn our TLR's back on to keep them out.
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01/13/2012 11:53:00 PM
http://www.polygenicpathways.co.uk/BLASTS.htm
We mustn't leave out those more fortunate to just be diagnosed as psych whom we now know have infectious organisms genes attached to theirs but are never afforded treatment....Why? Because business is good...In the prisons, in the psych hospitals, in the drugs used to treat, in the doctors who fail to do their own research and only work with guidelines developed so the infections would not be found. There is No honor among thieves who have robbed the public of their lives, their country, and their right to live a long life and prosper....
AIDS/MadCow/Lyme is all the same gene swapping proteins and it is in our cattle, our pets, and our children who will carry the demise of man as intended when it was first delivered in vaccine.
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01/13/2012 11:46:00 PM
http://www.canlyme.com/morgellons.html
Did anyone ever look at the skin of the syndromatic to see if they can induce to see? NO despite the FACT it is being found in all syndromes of unknown origin caused by their immune suppression.
http://www.ncbi.nlm.nih.gov/pubmed/22233534 2012 Jan A novel expression system for production of soluble prion proteins in E.coli.
How do you like your prion abilities they gave us in Pam3cys?
http://www.sciencefriday.com/program/archives/201201133
New Tuberculosis Strain Thwarts All Antibiotics
Or would you prefer its hiding abilities in Pam2cys/Mycoplasma?
Or age of syndromes has been a huge lie to protect profits and to one day take over this country by making US too weak to fight by those who work with the people who knew all along how to fix it and didn't. Now they move for Chemo which will only cause more harm instead of the real treatment---long term antibiotics and stem cells---so they can treat and send the bill to Uncle...Ain't that a whoopin...You got to pay for your syndrome and then you get to fix them all...LOL
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01/13/2012 11:29:00 PM
http://www.plosone.org/article/info:doi/10.1371/journal.pone.0029914
This just goes to show you there is no false POSITIVE.....There is only false NEG.
They don't want to get the people the help they need for the prion like abilities of our infectious now have due to the gross incompetence of our medical establishments today who have only sided with the profits....Because all the millions out there stuck in their syndromes can all be treated to cure because they are really sick with sick proteins that can and are swapping genes with not only us but with agrobacteriums as well they give you a syndrome so they can continue on their merry road to riches, because you cannot jab someone who is really sick, but its ok if they just got a sticker on their forehead of some stupid syndrome----that is really infectious organisms that have swapped genes to hide....And they knew all this back in the 80's when MadCow/AIDS/Lyme all appeared within 4 yrs. of each other because they gave us these new abilties in the form of genetically altered organisms for use in vaccines and then did nothing to stop stupid from destroying our country with the 1 every 4 mins now being diagnosed with Autism, of which 4 out of 5 are boys....Which means in another 30 yrs. of stupid we will be raising some other flag of the crooks that sold these US out to them 36yrs. ago. We now know what antibiotics send it into cyst form to only emerge latently. And we know the lies of medicine must stop in the prion epidemic that is caused by vaccines using organisms to illicite an immune response as evidence of it works...Because they don't and never did...All they did was hide the infections in the proteins so you can now get your MS, ALS, Autism, Alzheimers, Parkinson's, Lupus, CFS, ME, Diabetes, Heart Disease, etc. etc. etc. which makes them more money....This is why they now look to tomatoes and beans for vaccine adjuvants----because they know we are never going to have a vaccine that works.
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Guest 01/13/2012 8:17:00 PM
Linda said, "Amazing, just got your reply today and it says it is a month old... typical of the TIMES."
You "just got your reply today" because the notification was in fact to a message posted that day. You are posting a reply here to the wrong message.
I wonder what Suzanne Somers would have to say about your behavior and online harassment of exploited patients.
Linda wrote (elsewhere): "It is with great pride and honor that I share my excitement. The Arizona Homeopathic & Integrative Medical Association have chosen me as the
recipient of the 2010 Arizona Integrative Woman of the Year award on
May 1, 2010.
They are also giving a Arizona Integrative Man of the Year Award, Arizona
Integrative Publication of the Year awards
Their Lifetime Achievement Award for Creating Awareness of Integrative
Medical Truths & Principals goes to Suzanne Somers. She has accepted and will
be attending.
I'm so humbled by this honor. I have worked for 30 years bringing
awareness and education to the community for Intergrated/Alternative medicine.
I stood at the legislature making sure that our alternative doctors got their
own medical licensing board, to have a right to treat patients with
intergrative/alternative medicine and modalities. I have fought for patients so
they may have a right to choose the path of healthcare they choose. To be
honored by these doctors, for my efforts, is beyond my expectations.
Tickets are $275.00 dollars, which includes the VIP reception. Awards
dinner only is $150.00. There will only be 100 tickets sold for the VIP
reception with the honorees. A full reception for attendees will follow the
Private VIP reception. For reservation contact _AzHomeopath@..._
(mailto:AzHomeopath@...) There are a few Table Sponsorships still open
for $1500.00
Angel Huggzzz
Linda or Angel "
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Guest 01/11/2012 3:39:00 AM
www.lymebook.com/fight/about/
Linda wrote "I think God has a purpose for me, and that includes using me as a teacher to help people"
Do you think God intended for you Linda to post inflammatory, intimidating and hateful comments on the Internet as in the above message where you wrote "you crack me the hell up.... may a muff of ticks grown in your crotch..."
Linda allegedly has volunteered for "the Phoenix Police Department’s Gang Prevention unit, Students Against Drunk Drivers, and the LARK program to stem drugs and alcohol use among young adults", yet you are posting disparaging comments about a young woman who was victimized by reckless prescribers.
Alyssa almost died as a result of their treatment. Almost Died. Dead, sealed in a coffin, forever, never to be seen or heard from again, dust to dust, because of these reckless medical providers.
The fact that you promote and condone the reckless actions of these so-called medical professionals is beyond deplorable.
Treating people in this manner is not in the best interest of public health. http://www.publichealthalert.org/staff.htm
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Lymeangl 01/11/2012 2:22:00 AM
ROFL......you got a lot to learn my dear.....but are entitled to ignorant comments....is your daddy a Western doctor???? heheheh
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Lymeangl 01/11/2012 2:17:00 AM
Amazing, just got your reply today and it says it is a month old... typical of the TIMES.
This newsprint is located in an alternative medicine state, with many licensing boards. It is obvious that the author of the article doesn't have a clue and DID NO TRUE RESEARCH or they would have written it differently....
Typical of a patient NOT TO FOLLOW ORDERS....I know of this patient, trust me this patient found it hard to meet recommendations to help her get control of Lyme....I have had THREE Lyme infections and treated all three with alternative medicine with great succcess....While Lyme is not an easy disease to treat, for MANY MANY REASONS, it takes DIET, supplements, antimicrobals, etc., etc., etc., etc., to get control.....THERE IS NO CURE FOR LYME, but you can certainly get control and live a normal life.....
I battled FIVE cancers with the Lyme infections and AGAIN, I beat the Cancers using ONLY alternative medicne...
I'm quiet frankly tired of so called journalists writing about something they have no clue...
WE live in a state that is the MECCA of alternative medicine....GET EDUCATED BEFORE YOU WRITE TRASH....
You need to get Jana Boomersbach back on staff, so the New Times can raise it's class of reporting....disgusting !!
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Guest 01/10/2012 11:35:00 PM
"Is she better now was it herx reactions or something else? "
A "pile of prescription drugs" would make and keep anyone sick. These so-called Lyme specialists can't tell the difference between the toxic effects of a "pile" of drugs and Lyme disease. They will gladly diagnose any symptom as the effects of Lyme disease and sell you any bogus treatment you are desperate enough to purchase.
Not everything is a Herx. Not every illness is caused by an infection. Not everyone capable of graduating college and passing a test should be able to practice medicine.
Hopefully people will follow Alyssa's story and fewer lives will be endangered by the next quack that comes along.
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Kimjcomeau 01/10/2012 10:09:00 PM
this is the rare case which gets a long story yet millions dying for not being treated for lyme and now this story discredits so much. We need more people to be properly diagnosed but especially those with lyme. What didnshe have? Is she better now was it herx reactions or something else? the idsa is corrupt and there is no chance anyone with chronic lyme would even make progress with one month of antibiotic treatment. This disease destroys lives and it takes a long time to get rid of. It is man made changed from what started in europe and then a scientist during war world 2 created lyme as a bio weapon to hurt humans. Animals can tolerate lyme very well because it was made to trick the human immune system and destroy and hide. Having lyme disease is hell and my lyme dr is saving my life and 10 months of treatment im about 60% better which i will take and im greatful after years of being sick with no hope and false diagnosis. This story was an all natural yet says she was on to much stuff. I guess i dont understand the story..
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11/30/2011 3:39:00 AM
please do as you will learn something my dear.....people like you crack me the hell up.... may a muff of ticks grown in your crotch....oh yea and go to the IDSA BOYS FOR TREATMENT.....LMAOOOOOOOOOOOOOOOOOOO
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11/30/2011 3:28:00 AM
I live in an area where more than 50% of the ticks are infected with lyme and documented by the state dept of health. The ignorance of the medical community left me very ill. I am grateful for the treatment I received from a LLMD and it literally saved me from being disabled and in excruciating pain for the rest of my life. I have almost fully recovered. 2 years ago I cuold not drive myself in a car for more than 15 minutes. I could not do my laundry. Now I am back hiking mountains thanks to a smart doc and antibiotics.
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guest 11/18/2011 10:55:00 PM
Amazing that this article was so long. Longer than it deserved. If this girl and her family did not agree with the diagnosis and treatment, they should have moved on, not trashed doctors who were treating in good faith. Patients have a responsibility too. They are part of the team, not passive recipients of treatment.
And this journalist should not have used this case to make wild generalizations about the whole field of lyme disease. What a stretch. Journalistic malpractice?
So, what does the girl have, instead of lyme? Have the second guessers figured it out yet? Isn't it interesting that some doctors were willing to say what they thought about her case without having seen her or her records at all. Which is the more unprofessional?
The more common scenario is lyme disease not diagnosed, patients given a dozen different diagnoses instead. Your story is about a zebra. Most lyme patients are the horse. If you don't know what this means, ask any medical student.
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Wirefreeboys2 08/27/2011 1:55:00 AM
It is unfortunate that Alyssa faced what seems like an insane and over controlling doc or nurse practitioner, however please don't use this story to discredit the existence of chronic Lyme disease. Just like any other disease, you want to make sure that you interview, screen and properly select your own physician to help you heal. I for one was blessed with an LLMD in my area that cared, and gave me all the proper disclosure for each protocol that was used in my battle against Lyme. 6 years after my late diagnosis (after 2 incorrect negative tests) I have regained my life and eliminated 80% of my symptoms that left every doctor I met with baffled and befuddled before I met my Lyme literate MD. I doubt that EBV is the sole culprit in this case as I too had highly elevated EBV levels and so did a vast majority of folks that I have met with Lyme disease along with heavy metal poisoning and a wide array of other conditions.
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HughWillRidmee 06/04/2011 2:55:00 PM
Linda -TWO lung Cancers, ONE Breast Cancer, TWO parotid Cancers using ONLY alternative medicine and modalities....I was also diagnosed with RA, Fibromyalgia, CHF, MS, Chronic Fatigue, MOLD pneumonia, Lyme and company - I'll see you and raise you a frontal lobotomy, regrowth of my left foot (twice), a lifetime of having to cope with dihydrogen oxide and five diagnoses of hypochondria (but hey - what do doctors know?) - I'm still here and have managed to cope without ever involving any alternative/complementary expert.
PS when I've got my sixteenth birthday do out of the way I'm planning to write a book called "Gullible's Travels". I'll be sure to visit AZ as I reckon it may provide enough interesting material for at least three lines.
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05/26/2011 9:58:00 PM
More importantly, is there any way that Phoenix New Times can blame this on Sheriff Joe?
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05/26/2011 9:01:00 PM
We all live with a healthcare system that is fundamentally corrupt and immoral, I know this because I come from a country with a great healthcare system and am easily able to compare the 2.
Only the US turns a buck off sick people, nowhere else does that, and the physicians are still plenty wealthy, one of them is a friend of mine is Australia. He lives like a king and doesn't have to steal from his patients to do it.
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Me 05/26/2011 2:20:00 AM
http://www.azmd.gov/glsuiteweb/clients/azbom/Public/Profile.aspx?entID=1617749&licID=183012&licType=1
Your comment is spot on, but I'm hoping you aren't the Marc Bauder, MD from the above link...
Either way, the AZ Medical Board website is a good way to figure out if any doctor you plan on going to has an undesirable record.
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Marc Bauder, MD 05/21/2011 9:42:00 PM
As a family physician, MD, with 30 years of clinical practice I can say that these two greedy malicious practitioners should have their credentials revoked on the strength of this case alone. Their zeal for providing this pathetic sideshow simply in order to separate Alyssa and her parents from their cash is sad, evil and reprehensible. I am reminded of charlatans in the early 1900's who would give tapeworm eggs to obese persons for large sums of money, also for a 'miracle treatment.'
The crowning irony of this tale is that Alyssa has gone from being plucked and endangered over one mythical disease to treatment for another; Epstein Barr Virus.
I know that it is hard to hear, but I've seen this parade for thirty years; the fashionable mythology for persons who feel bad, Candida, EBV and Lyme.
Best wishes to Alyssa and her parents.
Be cautious.
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Joshuas 05/20/2011 1:47:00 PM
Excellent analysis here. great story
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Kgr8day 05/20/2011 1:51:00 AM
What a pertinent and great story! Thank you NT for hearing this young woman and her mother. All of us need to be smart consumers of our healthcare. When there is a Care Provider doing things in either a terribly misguided way or out and out taking advantage of desperate people, they need to be brought to light. Now this group MAY be helping some, but they are definitely on the fringe and clearly wrong on several counts. I believe that they should be made to pay back this family, first by asking then by threatening to make a formal complaint to the state board and/or by contacting channel 12 On Your Side. The formal complaint maybe needs to happen, primarily because this may be a case of malpractice and working outside the realm of what a Nurse Practitioner should do, given the length of time of holding onto a case without outside referrals to M.D.s, or D.O.s in appropriate specialty areas. Furthermore, the Nurse Practioner in the one case is misrepresenting herself to her clients and other care providers as a "doctor," allowing the assumption to be made that the information in reports was being provided by an M.D. or D.O. I have worked with and been treated my excellent scupulous N.P.s for many years. They are always very clear about expounding on their clinical title, place in the medical heirarchy, their practice benefits AND its limitations. I have often and currently do, for one health issue preferred seeing a N.P. as they tend to give very holistic and solid care while spending more time with me. They DO NOT sit around on a situation which is not responding to treatment and they do not work, "over their head." I do wish your article had stressed that N.P. are normally very excellent and thourough care givers and have many advantages over seeing a medical doctor. Then there is this very shady implement for treatment around which their entire practice seems to exist. That is just all wrong in what I read here. I am all for new technology and innovative treatment models, but a treatment should be just one tool in a line of many tools used to get people well. They are misrepresenting the facts and known statistics of Lyme's Disease and then, worst of all treating under those false pretenses. Finally, if the girl had repeat tests which were clearly negative, especially in the light of the fact that false positives are common for Lyme's then that is another area of the question of malpractice, in my opinion. The use of the word, "biofeedback," here is very loosely used in my opinion also especially by a clearly wierd and controversial machine which claims to do things which surface Electromyography (I am an expert in this area) simply cannot do. This disturbs me because the emergence of surface electromyography in medical and therapeutic practice for evaluating and treating brain function (EEG, which I know little about), psychotherapy, physical rehabilitation, evaluation and treatment of urinary and bowel incontinece and more lately in neurological assessments is a crucial and highly valuable and literally groundbreaking progress. In some of these areas, sEMG has been used for quite sometime and only has gotten more solid in the last 10 years with improved equipment, signal quality/stability/reproduceablity with greater bandwidths with improved means of managing noise (interferance by wire or electrode movement or by the lights, etc). Improved computer and software technology is also why a tool only previously suited for a very limited scope of valid uses was pretty much restricted to researchers and scientist who fully understand the capacity and limitations of their equipment. It has been in use as a clinical tool for evaluating functional muscle behavior (and then only for surface muscles which is still alot) for like 60 years. As a Physical Therapist who has worked in the pioneering phases (and in some ways still are in that phase of existence) to current use of very sophisticated equipment, I hope your article and the equipment described therein, does not damage hard fought ground in the goal of bringing sEMG into full acceptance and integration into mainstream rehabilitation. I would like to tuck in here that equipment and software, which designates how the electrical or thermal or range of motion or torque and speed of motion (which are not all the ways with which "biofeedback," can be used) data is managed, and expressed for the patient and clinician. In saying that each device and its software are pretty specialized towards only the function and discipline for which it was made. Each device has its own level of validity, reliability and limitations with respect to signal or input quality and many other parameters. To apply sEMG for biofeedback ideally takes a practitioner who has worked to specialized in not only the equipment but the very foundations of the physiology of the body, muscle and the source of the signal and/or input data. In plain words, one must understand fully what the heck they are dealing with especially when it comes to limitations and possible potential for getting misinformation or misinterpreting the information.
The kid and mom should get their money back and based off of this article I would not send my child or myself or anyone else to this clinic. That being said, the mom should have (but was clearly taken astray by someone she trusted) taken her daughter to a Gynecologist and not just any GYN...someone who specializes in the testing, assessment and differential diagnosis of hormone problems. Not all GYNs are equal in this area, in my experience. Some have chosen to delve deeper in the complexity of those crazy things! In fact, this type of clinician may have ruled out hormones as the problems and referred the girl onto the next appropriate specialist, or found that the issue was hormones and _____? and co-treated accordingly. Whew! I had much to say on this article!
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05/19/2011 8:03:00 AM
It's terrible that this patient was misdiagnosed with Lyme when she didn't have it, and spent money on treatments that didn't work which she didn't need.
It's terrible that other patients are not treated for Lyme when they do have it.
The testing needs to get much better (false negatives are a huge problem; for some inexplicable reason the CDC does not use the "band" most unique to the Lyme pathogen as diagnostic for Lyme disease) very fast!
Doctors tend to have bad attitudes that Lyme may not exist in their state, and refuse to even run the tests. Then after a year or so, Lyme can trick the immune system (very neat for survival of the organism; not so neat for the infected person) so that antibodies won't be made and can't be found in testing.
Devastating.
For a really good read on Lyme disease (a novel which also explains some of the politics), try Over The Edge, by Brandilyn Collins.
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EmersonAilidh 05/19/2011 12:48:00 AM
I understand that you're a rebel, but knowing about Lyme (which you obviously don't) doesn't mean that you know a thing about other conditions like Autism. Not everyone who isn't beating 10 cancers, 4 HIV infections, & 7 Leprosy instances a day is a "sheep". There is literally NO way that 90% of Autism kids got it from Lyme!
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EmersonAilidh 05/19/2011 12:46:00 AM
It's pretty sad that you "gotten" that second infection from mosquitos. If I wanted to be taken seriously though, I'd try brushing up on spirochetal transmission & first grade English. How can you advocate your energy machines so heavily & then say that you're "ONLY" using alternative IVs, antimicrobials, herbals, supplements, diet changes, & electromedicine as well? That's the same as this doctor throwing 100 pills at the patient.
The Lyme situation is HORRIBLE & needs to be rectified IMMEDIATELY, but it's uninformed sufferers that are impeding the very process they're trying to encourage by making claims like this with NO support. Who was the 18 year old mute who began to talk? Why does a machine that cured your cancer also supposedly work on infectious diseases & behavioral/developmental disorders as well? What evidence do you have that Lyme is spread through sexual contact, fluid, & vectors other than ticks? On that note, how can you even be so certain that you got it from a mosquito...? Do you realize that "deep kissing" transmission would imply that it could also be caught by drinking after someone with Lyme? There is no special tonsil-exclusive transmission. I'm well aware that Borrelia Burgdorferi is the same type of bacteria as Syphilis. Many bacteria with similar characteristics are transmitted in totally different ways. I'd love to see your sources, but I doubt that they exist. i understand that all of these things are being brushed off by the CDC, IDSA, etc... but until YOU can back up what you're saying, you presenting these things as facts with no proof is JUST as bad as them saying that Lyme is easily treatable without proof.
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EmersonAilidh 05/19/2011 12:18:00 AM
"Wouldn't be making comments based on your opinion" .....isn't that what a comment is? Sorry, I'll try to keep logic out of it next time. Obviously he's not welcome here.
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EmersonAilidh 05/19/2011 12:16:00 AM
I am a sugar free, caffeine free, gluten-intolerant vegetarian, actually! I haven't had a soda or fast food in eight years. No GMOs for the past two. I wouldn't be so quick to judge if I were you. I'm the furthest thing from ignorant, I've lived it just as much as any other Lyme patient has. My childhood consisted of being passed around from allopath to allopath for over half of a decade before finding my Lyme.
I am on alternative medicine! I see a DO who combines traditional & alternative approaches. As far as homeopathy goes I am on Adrecor, Samento, Cumanda, Para-A, & have been on more in the past. Did I say a single negative thing about homeopathy itself in my comment? No, not at all. It's patients like the subject of this article that take the old adage of "Doctor knows best" to the extreme, don't take care of themselves, then blame the homeopathy that make us look bad. If any of your doctors prescribed you sleeping pills, painkillers, or antibiotics you knew were exclusive to hospitals... would you not be the slightest bit intrigued?
I'm not saying that alternative medicine is to blame. I certainly don't believe in blaming the victim, but patients who submit themselves to this kind of treatment & then publicly smear the doctor are what gives us such a bad image. It's absolutely irresponsible to see an alternative physician that you know doesn't adhere to your average protocols & have all the problems that this patient did without questioning or thoroughly researching her own treatment. 100 pills a day & I'm still not getting better? Something smells fishy... My Lyme doctor is prescribing me Ambien? That's pretty suspicious... I'm in the emergency room & my Lyme doctor is telling me not to disclose my diagnosis? #$!@ that. Like I said, I've been taken advantage of by the medical world & totally sympathize but I didn't go out & criticize the treatment of an entire disease because of my bad experience. You think this looks bad just for alternative medicine? This looks bad not only for anyone with third-stage Lyme but also any doctor legitimately trying to help.
P.S. ~ Advocating the treatment of FIVE cancers with homeopathic medicine is also insanely irresponsible. Lyme is one thing, something that can & will kill you is something else entirely. I understand that it supposedly worked for you, although I have to wonder HOW someone manages to get that many cancers in the first place, but homeopathy has ended more lives than it has saved in regards to conditions like Cancer & AIDS. Having Rheumatoid Arthritis, Fibromyalgia, Congestive Heart Failure, Multiple Sclerosis, Chronic Fatigue, Pneumonia (what does that have to do with anything?), & Lyme/co-infections means that obviously those energy machines aren't doing as much as you're implying they are.
Dismissing conventional medicine is JUST as ignorant if not moreso than people dismissing alternative medicine. Remember polio? Or Smallpox? Remember when the life expectancy of someone with Down's Syndrome was 25 years old? You have conventional medicine to thank for the fact that those things are just memories. Embrace homeopathy all you want, but before you point your finger at me for acknowledging that not all things allopathic are inherently evil make sure your own hands are clean.
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Ajincali 05/18/2011 5:54:00 PM
Trust you life to a quack and your going to be be deeply Ducked!
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Linda 05/17/2011 11:20:00 PM
Dr Hammers...may I ask? Do you practice Western/allopathic medicine or Alternative/Integrative medicine?
My doctors are MD's or DO's, BUT they also hold their MD(h) license, to assure me I'm not strangled by allopathic medicine, which almost killed me a few time until I learned...
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Dr. Lynn 05/17/2011 11:00:00 PM
A large part of this issue stems from people posing and practicing as licensed MDs and DOs. Sure, Nurse Practitioners, Physician Assistants, those practicing homeopathy and naturopathy can help individuals in many ways. BUT, allowing NPs to practice medicine, is a slippery slope that serves no one well. Call me what you want, but Dana, you are NOT a physician. Please don't pretend to be one. And voters in AZ, please rethink your laws allowing non-physicians to practice medicine.
Lynn M. Hammers, BSN, RN, MD
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FDNH 05/13/2011 12:09:00 AM
Linda???? Is it appropriate to allow medical professionals to disable a patient with excessive medications and herbs to the point of causing more harm than the disease they are treating?
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Linda 05/12/2011 5:14:00 AM
OMG....tell me it isn't so??? You believe in double-blind trials??? hmmmmm many double-blind trials has said their drugs are good drugs, yet they kill patients....
I don't need no stinkin scientific studies to prove to me what works....there are thousands who live in Arizona who feel the same way....
Tell you what mr journalists, you trust and take all the allopathic medications you want, but don't call me when you lay dying.....
YOU have a right to YOUR choice, as I have a RIGHT to make my OWN CHOICES and I choose alternative medicine....you stand behind your studies (which many lie about their findings) and I'll continue to live using MY CHOICE of alternative medicine and modalities.
LMAOOOOOOOOOOOoo you crack me up......make sure you run to the allopathic when your prostate begins to act up....hehehhehehe
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cr0sh 05/12/2011 4:56:00 AM
Prove me wrong. Show me studies by independent researchers who use double-blind trials and large sample populations which support your hypotheses. That is all you have to do. Post them here. I'll be waiting...
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Lymeangl 05/12/2011 4:56:00 AM
LMAOOOOOOOOOOO you are right, that is why I put it in quotation marks, Dufus...ROFL
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cr0sh 05/12/2011 4:54:00 AM
I'm not the one who's posted about purchasing such "machines" - you seem to be in denial, given your possible large "investment" (time, money, belief, etc) in the whole scheme - it's understandable.
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cr0sh 05/12/2011 4:51:00 AM
Perhaps a bit of "reading comprehension" is in order, Linda; note that the line is from the article itself...?
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FDNH 05/11/2011 4:28:00 PM
Linda,
I repeat, even if all of what you allege were true, does it justify medical professionals in prescribing excessive medications, herbs and other treatments to the point of disabling the patient worse than the disease itself?
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Linda 05/11/2011 3:32:00 AM
lyme4u (unregistered) wrote, in response to Joshuas (unregistered):
I understand that Flak pay is good for the New Times???
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Linda 05/11/2011 3:28:00 AM
What I find interesting is the amount of comments that sound like they were written by the same person, but different names??? Ya Thunk??? ROFL
IF the new times really want to help those that are suffering you would write about this devastating/horrific disease and stop denying there is Lyme in Arizona....Talk to real patients and get facts....BTW, talking to IDSA is like FOLLOWING THE MONEY!! Sad but true!!
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Linda 05/11/2011 3:23:00 AM
An epidemiologist tells New Times that Lyme disease is rare in Arizona because the culprit tick cannot survive long in low-humidity regions.
"We don't have the ticks here," says Craig Levy, program manager for the state health department's Vector-Borne and Zoonotic Disease Program.
*******I can't believe Craig Levy is so stupid to LIE about Lyme in Arizona publicly....Lyme is NOT rare in Arizona and he knows it. Ummmmmmm...remember the dead deer your colleague brought to you Mr Levy??? Remember the reports you shredded for the sake of tourism? Karma is a bitch and the day will come for those who have lied and continue to lie about Lyme in Arizona. How can you sit back and watch people die, especially children....
*******Got a question for Craig Levy.....do you think a tick gets to the border of Arizona and says """""Oppsss let me off here, they don't have ticks in Arizona???.....Do you think birds stop in mid-air and tell all ticks to get off, as they don't allow ticks in Arizona?? Plus, they have no way of testing our blood supply for Lyme & company.....here is what they ask you...
Have you ever had Lyme? You answer yes or I don't know....they say, were you given antibiotics for 3 weeks for the Lyme? You answer, yes they did? Oh, ok we can take your blood and INFECT OTHERS WITH IT.....I have a friend whose father got a heart transplant and died a year later, the autospy showed the "new" heart was full of Lyme!! They are infecting people with Lyme through blood, just like they did Hepatitis B and C.....We have tried getting the Dept of Health to classify Lyme as an STD, but they will not do it. Teens are giving their Lyme disease to others through sex and deep throat kissing, yet we have no Lyme in Arizona.
Give me a break....oh yea, I have a piece of swamp land in the desert for sale, cheap....you got any buyers for me.
********This is a world-wide epidemic that I would not wish on my worst enemy...however, there are so many who have to learn the hard way....so be it....
********One last thing...a survey was sent to all the Infectious Disease Doctors here in Arizona inquiring if they would allow their name to be listed as doctors who treat Lyme....ALL 86 of them said, "We don't treat Lyme disease"!! True story....my question is if the IDSA docs don't treat Lyme, who the hell does??? Oh wait, I forgot, there is no Lyme in Arizona....LOL
*******Shame .....Shame on you Craig Levy....
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lyme4u 05/11/2011 3:08:00 AM
Why are these 2 still licensed to practuce medicine? How awful does it have to for these types to be stopped?
And Janet Love is seeing autistic kids (who supposedly have Lyme)? Her name appears in the seeking doctor help at the Lyme-induced Autsim Foundation http://www.lymeinducedautism.com/findalymeautismdoctor.html
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FDNH 05/11/2011 1:51:00 AM
It is these types of "kooks" that proliferate in the chronic Lyme treatment field. This type of outrageous treatment, 100+ pills a day, is just what the LLMDs are prescribing. As horrible an experience this was for Alyssa, this is happening to many chronic Lyme patients. Most of them probably don't even have Lyme disease.
Are these medical 'professionals' keeping their patients drugged out of their minds on purpose? Are they intentionally misdiagnosing drug interactions as Herxes? Why are doctors allowed to treat patients as if they are worthless lab rats to be toyed and experimented upon?
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Joshuas 05/11/2011 1:36:00 AM
All interesting comments. I don't think the story was saying that Lyme disease is a fake disease or anything like that. It was just about a girl who got misdiagnosed by a couple of kooks.
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FDNH 05/10/2011 8:58:00 PM
If all of what you allege were true, does it justify medical professionals in prescribing excessive medications, herbs and other wacky treatments to the point of disabling the patient worse than the disease itself?
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Dclaesson 05/10/2011 8:42:00 PM
Well this article neglects to mention exactly what Alyssa was suffering from. I am one of the people who was mis-diagnosed for many years who does have lyme and co-infections and am CDC pos on a WB from Quest Diagnostics. Along with toxoplamosis, Chlamydia pneumoniae, Mycoplasma pneumoniae, Herpes viruses and a whole host of other infections. My daughter has missed two years of her life and school and is pos at QUEST and Igenenx for Borrelia, Babesia duncani, Bartonella, Ehrlichia, Parvo virus B-19, Brucella, HSV 1 and HHV viruses and papillomavirus (warts, sign of weakened immune function) Her IgG sub classes are low as are mine and we have been battling all these infections. A recent article in Pub Med showed many hunters had a panoply of infections in Austria. We have been infected with bacteria/protozoans/viruses/nematodes/fungi and who knows what else from a tick bite and some of these pathgens are transmitted via mites. biting flies, fleas, bed bugs and other biting insects. Beagle puppies in WI showed up with multiple kinds of Borrelia, Babesia, Ehrlichia and Powassan virus. Many of these pathogens enter macrophages and are tolerated by them...such as Mycoplasmas, Chlamydias and Brucella. Other people we know are positive for Tularemia and Q fever or Coxiella burnetti. Two people I know have Borrelia plus Typhus and Rocky Mountain Spotted Fever and who knows what else since our testing is so inadequate. Latent viruses held in check by our immune systems have wreaked havoc and we see twenty years olds with shingles. No one is helping us and we are left to die. The NIAID division of the NIH is looking for a vaccine and then and only then will they own up to the devastation of people's lives and the deaths from Borrelia and co-infections. The last one caused life long arthritis in certain people. Parts of our immune system are not operational as a result of these infections. A vaccine in the works is looking at blocking the tick from salivating so that it can not inject all these pathogens into us but that has been quite unsuccessful to date. This is a world wide epidemic that is being shoved under the rug and until you or someone you love gets this you will believe the lies propagated by the Infectious Disease Society of America. Wake up America because this will affect someone you know in the very near future.
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Linda 05/10/2011 8:05:00 PM
Oh Emerson you poor dear....I do NOT sell these machines, in fact I own several....I BEAT TWO lung Cancers, ONE Breast Cancer, TWO parotid Cancers using ONLY alternative medicine and modalities....I was also diagnosed with RA, Fibromyalgia, CHF, MS, Chronic Fatigue, MOLD pneumonia, Lyme and company, and the poor things didn't have ONE clue how to treat me WITHOUT THEIR TOXIS DRUGS!!!! In fact because I volunteer and gift my knowledge and experiences with many people who can not afford healthcare, many of these doctors gave me treatments FREE.....
Statements like you just made are ignorant to the max.....I don't really care if you believe or not....I'm alive today because of alternative medicine, IV's, modalities and running from the allopathic doctors....
We are bless here in ARizona to be the "mecca" of alternative medicine....you can continue to run to the white coats and take their toxic drugs.....NOT ME....NO one sold me any false anything....I did my own research and sought out what I needed to do. BTW, governenment stats prove that over 50% of the population has and is turning to alternative medicine....they want to get well dude.....I suppose you drink diet soda's, eat fast food and eat GMO foods??? I will pray for you....
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Gorhob 05/10/2011 6:14:00 AM
By "great success" you mean for the people selling you the false hope right? Coz those are the only people who experience success when fools buy into this tripe.
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Deblime232 05/10/2011 3:15:00 AM
Are you talking about the story, or the last series of comments? The story was a very easy and quick read, and very informative, whether you agreed with the premise or not.
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Linda 05/10/2011 2:33:00 AM
Emerson, I treat with a couple of docs who hold their MD,DO, MD(h) license....they literally saved my life on 5 occasions.....There are a couple of allopathic MD's who purchased this new machine last week and are treating themselves and their families in their homes....amazing machine....
You will never convice me that energy machines, electromedicine machines and other alternative machine do not work.....I OWN THEM ALL MYSELF....I use lasers too....there is a new magnetic machine out now, that is APPROVED by the FDA....I'm saving my money for this machine....it is doing miraculous things.....when you watch an 18 yr old "mute" autistic young man begin to speak and lecture within 6 weeks of 3'x a week treatments, you tend to get excited....The sports communities are excited about this machine....so pleaseeeeeeeeee, if you have no experience or have never used these machines, I wouldn't be making comments based on your opinion....I use them everyday with great success....
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Linda 05/10/2011 2:18:00 AM
hmmmmmmmmm how many 17 yr old or 19 yr old's follow a strict gluten free, sugar free, caffeine free, dairy free diet, and organic with NO GMO.....???? most older folks can't get their heads wrapped around this....I would lay a bet that this young woman didn't follow the strict regimen you need to follow to get control of Lyme & company....did she perhaps have XMRV?? When you don't clear your body burden of pathogens and toxins (including heavy metals) your healing path will be a slow one....
No, there is more to this story and we might never find out all the FACTS....
BTW, May is Lyme Awareness month and there will be a rally in DC in a couple of weeks....just remember folks, you just never know, as one day you might be stricken with this horrific disease....Are you having unprotected sex? Have you had any blood transfusions?? Do you ever get flea or mosquito bites? Do you ever participate in deep throat kissing....??? Just a warning, you just never know.....
I have several friends who had Lyme passed down to them from their grandparents....you might have it and never know, until there is an accident, surgery, birth or just plain stress which could take your immune down and let this hidden disease raise its head....
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Anon 05/10/2011 2:16:00 AM
"Arizona is leading the country" in alternative medicine doctors that are killing people: http://tucsoncitizen.com/arizona-news/2011/03/02/arizona-sweat-lodge-trial-gurus-words-turned-against-him/
"“There’s no sweat lodge like my sweat lodge,” Ray said in an audiotape from the event that prosecutors played in the courtroom. “You’ll feel like you’re going to die. I guarantee that.”
He says "You'll feel like you're going to die" - sounds like the bs LLMDs tell their patients who are having near fatal drug interactions and overdoses. It's all a HERX - yeah, right!
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Linda 05/10/2011 2:07:00 AM
Again stupid statements....do some research...over 250,000 patients die from allopathic drugs yearly.....allopathic docs kill just as many.....hmmmmmmmm wonder why we don't hear of the alternative world doing the same thing with the same numbers....
I teach people to make better health choices and to remind their doctors that THEY ARE THE LEADER of their own healthcare teams and their doctor is merely a member of that team...
I don't need no stinkin scientific study to tell me how much better I feel....I RUN FOREST RUN from the allopathic/western world of medicine....
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Linda 05/10/2011 2:03:00 AM
Clearly, with their crazy machines and slew of drug cocktails that you must buy FROM THEM, this is a major racketeering business. They have perfected their selling techniques, and the ability to soothe patients and tell them what they want, or think they need, to hear.
Excuse me but these crazy machines and a slew of cocktails like (100 gram VitC - UVB blood IV - Hydrogen Peroxide/DMSO - Garlic Oil IV's - Meyers Cocktails plus more) I have been doing over the last 30 years with GREAT success....I had 2 lung Cancers, 1 breast cancer, 2 parotid cancers, 2 Lyme infections, Aspergillus MOLD pneumonia, Congestive Heart Failure, RA, Fibromyalgia, etc., etc. ALL of which I beat using ONLY alternative medicine, herbals, supplements, modalities, etc., etc., etc., sooooooooooo please stop knocking something you OBVIOUSLY NO NOTHING ABOUT....Thank the good Lord that Arizona is the "MECCA" of alternative medicine....
This is really gonna get your boxers/panties in a bunch....we now have the "first" Homeopathic Medical School in ARizona, the first in US since the early 1900's....PLUS, the Southwest Naturopathic College is outstanding....all of the students, doctors, etc., etc., etc., are LICENSED WITH A "REAL" MEDICAL BOARD OF EXAMINERS....
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Linda 05/10/2011 1:49:00 AM
more stupid statements....LOL
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Linda 05/10/2011 1:48:00 AM
What a stupid statement....
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Linda 05/10/2011 1:45:00 AM
Keep talking.....LMAOOOOOOOOOO....what ignorant statements.....LOLOLOLOL yeppers you are also a member of the sheep squad!!
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Linda 05/10/2011 1:43:00 AM
OMGGGGGGGG another sheep.... you have NO clue what you are saying....LMAOOOOOOOOOOOoo you are now becoming funny, but continue to make these statements, as it shows how ignorant you are....LOLOLOLOL
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Linda 05/10/2011 1:40:00 AM
"...to use seven antimicrobial agents to treat someone [allegedly] with Lyme disease can't be justified in any valid scientific literature..."
WHATTTTTTTTTTTTTttt?? I did the Cowden Protocol and with the second infection (bitten by mosquito in ARizona) and with the second infection did the Condensed Cowden protocol..... You do not understand the treatment case, OBVIOUSLY.....do your research before making such illerate statements.....
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Linda 05/10/2011 1:36:00 AM
WOW....THANK YOU for advertising the Public Health Alert....one thing about discussions like this, it helps to drive folks to read REAL reporting....
BTW, Lyme4u.....tap..tap..tap...Arizona is leading the country in licensed alternative doctors.....THERE IS A GOD!! Arizona is the "mecca" of alternative medicine in the USA.
This state is FULL of alternative doctors who are successfully treating Lyme & company.
NO ONE is going to tell me that I can't make MY OWN choice of medicine...I quit chasing the white coats years ago, when they almost killed me.....
Here darlin....>>>shoving some GMO foods, Aspartame, Splenda, etc., etc., etc., there is much more, but Lordy I don't want to overload your body with garbage foods...LOL
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Linda 05/10/2011 1:31:00 AM
Shoved towards??? LMAOOOOOOOOOOOOOOO Darlin they are running to the alternative doctors beggggiiing for help....I get a minimum of 10 calls a day, right here in Arizona of people who are dying and have children dying from this horrific disease....
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Linda 05/10/2011 1:29:00 AM
Anon....no doubt you are a sheep and/or paid to write the stuff you are writing.... Can you say Tuskegee syphilis experiment????
You statement about Under Our Skin proves to me even more you are a sheep....
May the tick armies crawl into your bed at night and feast upon you....
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Linda 05/10/2011 1:25:00 AM
IDSA means FOLLOW THE MONEY....The first Lyme vaccine they made actually GAVE people Lyme (one of the worst strains)...they claimed they pulled it, as no one wanted to get it...LMAOOOOOOOOOOOOOOOOo Yea Right!! NOT....
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Linda 05/10/2011 1:23:00 AM
This is a misleadingly biased article. Let's start with the problematics of this phrase is an understatement......For the most part I agree with what you are saying. However, until the journalist who wrote the article, walks in the shoes of those who are suffering and dying from the politics of medicine, then write an unbiased article and tell both sides of the story. BUT, the new times is not known for this....they are here to sell their rag....when Jana was with the new times, it was a paper I read weekly....now I simply use it for packing material when moving or storing things.....
Yes, I read this article, at the request of hundreds of Lymies right here in Arizona....
One other thing, I know for a FACT, that Craig Levy lies.....they don't want people to know how bad Lyme is here in Arizona, as it might hurt tourism??!! Tell that to your conscious Craigie boy....the studies you did 14 yrs ago prove differently....shame on you for shedding those reports....oh yea, a copy is locked up safely in a vault....
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Jvaritek332000 05/10/2011 1:20:00 AM
what a long winded non-sense piece that should have taken 2 pages.
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Linda 05/10/2011 12:51:00 AM
Lyme4U you obviously don't have Lyme or you wouldn't make such statements....I could give you thousands of Lyme/Autism children.....are you a sheep for the industry??? You obviously follow the boys/girls in the white coats....I DON'T....that is why I hAve been able to beat 5 cancers, 2 lyme infections and much more using ONLY alterntaives, modalities, energy medicine, etc., etc.
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EmersonAilidh 05/10/2011 12:51:00 AM
No one ever asks why the patient doesn't question a doctor who put her on 100 pills a day. You should be able to trust that doctors have your best interest in mind but frankly, you can't. If a bunch of people on the internet can smell a quack a mile away when you start throwing words like "Energy Machine" around, why does no one wonder why this girl didn't do her own research BEFORE shelling out ten grand & ending up in the emergency room?
Before Lyme I was diagnosed with Long QT Syndrome, Tourette's Syndrome, Temporal Lobe Epilepsy, Cervical Dystonia, & more. When I did finally test positive for Lyme after it had been allowed to fester & proliferate for seven years, it WAS through a run-of-the-mill blood test. Then came testing positive for Mycoplasma, Babesia, Bartonella, & a parasite. Stories like this are why I hesitate before telling people that I have chronic Lyme.
I don't see a naturopath or a homeopath or a witch doctor or anything like that. I see a MEDICAL DOCTOR. Of COURSE its wrong for doctors to be using energy machines & parasite zappers & aromatherapy & whatever's trendy right now, but if you don't research your own health care you get what's coming to you. $10,000 over four months should have set off every alarm for those parents. Having been taken advantage of by doctors myself I sympathize with them but you cannot place all of the blame on clinicians in situations like this.
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Linda 05/10/2011 12:45:00 AM
Anon.....YOU DON'T GET IT.....BTW, NutraMedix has 6 months free programs for destitute patients.....get your facts straight dude...BTW, I run like Forest Gump from antibiotics....I don't do pharmafia drugs....
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Linda 05/10/2011 12:32:00 AM
The Cowden protocol and the Condensed Cowden protocol works, HOWEVER, it takes more than a simple antimicrobial protocol to get control of Lyme & Company....I know as I have gotten control of 2 Lyme infections using ONLY alternative IV's, anti-microbials, herbals, supplements, DIET (gluten free, sugar free, caffeine fee and organic foods and juicing....I LOVE energy medicine and have had great success usig electromedicine, energy medicine and much more....
IF you are a patient being treated for Lyme & company, then YOU MUST MAKE A COMMITTMENT or you will never get control of this horrific disease....BTW, there is an epidemic of Lyme WORLD WIDE.....you don't just get it from ticks....I have NEVER had a tick on me....it is in vaginal fluid, semen, saliva, mothers breast milk, blood supply, etc., etc. etc.....The second infection I fought was gotten from Mosquito's right here in Phoenix...
I also am familar with this clinic and they are very good.....I have referred people to them.
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anon 05/10/2011 12:15:00 AM
Patients enrolled in pharmaceutical studies do so willingly and with consent. The studies are controlled, pre-approved and hopefully well-documented. The patient is aware they are enrolled in a study and is a willing participant. In pharmaceutical studies, the patient is generally compensated for their time, travel, and other expenses. They are fully informed.
In contrast, a doctor experimenting on unsuspecting patients during their regular office visits without obtaining consent is unethical. Additionally, in such an uncontrolled environment no reliable data can be formed. There is no accountability and no assurance of quality control measures. Findings from these back-office self-proclaimed medical researchers are essentially meaningless. When other physicians and researchers in controlled environments under strict established clinical trial procedures can not reproduce the same findings of these renegade studies, then these studies appear fraudulent.
The focus of this article is not on the pharmaceutical industry, but on the overmedicating, unethical and fraudulent practices being given to unsuspecting and desperate Lyme patients.
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Hock 05/09/2011 11:38:00 PM
I was going to defend my comment, but since you thanked me, I won't bother.
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Tpark 05/09/2011 8:35:00 PM
One final comment before I move on... I read several comments here and it sounds like there is much political debate going on. I just want to make a heartfelt call for civil dialogue amongst those that intend to communicate on this forum. It is human to vent, and I do so at times as well. Just a reminder that venting will not accomplish communication. So if venting is your intent, please preface it as such so as not to offend. Dialogue creates a space for communication. Please speak to faceless internet goers as you would someone that was standing in front of you, that is, with the respect deserved by virtue of simply being as human as yourself, with the same desires to find solutions as your own.
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Anon 05/09/2011 8:28:00 PM
It sounds to me as if you are trying to back out of admitting that in the past leading LLMDs have perpetuated their opinions that the Lyme epidemic was a result of a government coverup. Perhaps these LLMDs will stop these allegations now that the damage caused by their treatment protocols is being exposed.
As a patient, I do not care how Lyme disease came to exist. I don't care if infected ticks fled Plum Island. I don't care if every single federal agent knows about this Great Tick Escape and doesn't tell me. What I care about foremost is safe, ethical, effective and affordable medical care.
When LLMDs fill the minds of deathly ill patients with their own agenda of exposing government conspiracies it is counter-productive for the health of a gravely ill patient. These doctors and many others in Lymeland are using fear-based tactics to exploit the chronically ill. Watch the movie Under Our Skin if you want to see fear-based tactics in action. The movie should not be aired on PBS as a documentary.
Lyme disease is real. So are a lot of other diseases. It is the patient exploitation that is deplorable. It is the patient exploitation that must be investigated. Physicians who intentionally prolong patient care and who knowingly misdiagnose every symptom as a Herx in an attempt to lock patients into these endless treatment protocols should lose their licenses.
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Tpark 05/09/2011 8:11:00 PM
I'm curious if you have also tuned your keen observations towards the pharmaceutical industry who often fund research studies conducted at medical research facilities. Using your logic, if money is what guides intent, what has been the intent of the millions of dollars spent on research funding by the pharmaceutical industry? As to the cost o the Cowden Protocol to patients, how do you think these large studies are funded? Certainly some of them are lucky enough to receive funding from the NIH and other government organizations, but to those unlucky enough to not have a mainstream (which is not necessarily akin to correct) hypothesis or something that the pharmaceutical industry wants to sell, good luck getting funding. I do see the point you are making, and I do acknowledge that you have a good point. But I do feel that you are not extending the same logic fairly to other areas.
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Tpark 05/09/2011 7:57:00 PM
You are likely correct that there are some LLMDs that appear to perpetuate a belief in government operation gone awry. However I think it is more accurate to say that they hold the Infectious Disease Society of America (IDSA) and to a certain extent the Pharmaceutical and Insurance industry more accountable for the politics of this disease than our own government. The IDSA is not a government entity, it is a membership organization for infectious desease practitioners and scientists. I think that if these physicians you speak of take issue with our government, it is indirectly for not stepping in and policing the politics involved with financial interests and disease. There have been some recent actions taken by our own government. Attorney General Blumenthal took action against the IDSA because there was reason to believe that the organisation had special interests. Therefore it is misleading and inaccurate to say that leading LLMDs hold government operation completely accountable and that it is a conspiracy theory. Conspiracy theory is a weighty word with a whole lot of stereotyping and negative social connotation. It is both inaccurate and unfair to frame a discussion of real events with a loaded term such as this. It is mudslinging intended to delegitimize the voice of others before they have even opened their mouths. This solves none of the issues at hand. In regards to the term you used, conspiracy theory, I would like to pose a question to you. If our government did go awry, what would you call the people that dissent and take issue with it? Would you call this civil dissent conspiracy theory, too? Forgive me if I am incorrect, but I believe this is 'othering' behavior that does no one any good and does not solve problems.
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KellyAnne 05/09/2011 7:50:00 PM
Wow - offensive, ignorant, AND ignorant. But thanks for playing.
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Hock 05/09/2011 6:06:00 PM
I smell Mormons.
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KellyAnne 05/09/2011 8:10:00 AM
Ok, I wasn't going to reply, but now I'm just plain irritated! While I will not be so disrespectful as to call you a "retard," I will say, with a completely clear conscience that you really have nowhere near as much idea of what you're talking about as you think you do. Let me try to educate you just a little, so perhaps you can re-think a few of the points that you so vehemently try to make over and over.
While the article was well-written and attempts to make a clear and concise point, it is already SEVEN pages long (at least the online version). Believe me, when I say that if they were to cover everything, it would be so long that most, if not all readers would tune out long before they ever reached the end! Sadly, it would take up nearly the entire publication to go through everything in the detail that it actually deserves. This was an attempt to try and sum up months of what I would consider malpractice into just a few pages. Of course they are not going to be able to cover everything.
Let me clear something up for you, that unfortunately (by no fault of the reader), was not covered in this article. This is NOT the first "professional" that Alyssa ever saw for being ill. So, if you are thinking that Alyssa or her mother is an idiot for not seeking a "second opinion," you would be incorrect. As a matter of fact, FAR more than two opinions were sought out. Alyssa began to see Dana after many attempts of seeking help from traditional doctors. I'm not saying that this was or was not the correct path to take, but I can sympathize with their frustration and desperation. You also need to keep in mind, that they Dana's help was sought based on years of POSITIVE experiences that Alyssa's mother had with Dana in the past. When a patient-doctor relationship already exists, a rapport has been built, and you have developed a trust in a particular "professional," is it really so hard to believe that you might put your faith in that person again in the future? Again, I would not be so ignorant as to only apply such a statement to "alternative medicine" personnel. I believe that similar things can happen in the realm of "traditional medicine" as well. I have known patients who had seen the same doctor for YEARS and then suddenly were unhappy with that same doctor because of a misdiagnosis or some other negative experience. I think that it can happen anywhere, which is why I think that the same standards of responsibility should apply. If a "traditional" doctor were to so poorly diagnosis a patient and radically over-medicate them, the general masses would be screaming "malpractice" and demanding their head on a platter. However, when someone chooses an alternative rout for medical attention, everyone decides that the patient is an idiot and everything that happens to them is their fault. FYI, I am neither an advocate for alternative medicine, nor against it. While I believe that there are probably some very valid alternative medicine practices, I don't think that it is always the answer to every problem. I believe some situations REQUIRE true traditional medicine, while others may respond well to homeopathic or natural remedies, whatever you prefer to call it.
While I have never had any sort of experience with either of these two women, I know others who have. At one point, she was a person that many people trusted and sought help or advice from. As a matter of fact, some of the people commenting on this thread have also mentioned that they were patients of Dana's at some previous point in time, but that something seemed to change once she became involved with Love. I cannot speak to the accuracy of that claim, because as I've said, I've never met either one of them. I just seem to notice a recurring theme - "Dana used to be great, until she hooked up with Love" seems to be a pretty common sentiment from those who have first-hand knowledge.
I think probably the saddest thing to me in all of this is that CLEARLY something went very wrong here. While it is the patient's responsibility to choose and decide who they will trust with their medical care, some people simply aren't equipped to make that decision. Whether it's because they are simply trusting someone who has proved trust-worthy in the past, or they do have the means or mental capacity to make a sound judgment call shouldn't matter. What does matter is that as a society, I believe we all need to be aware of what can and does happen. This should never happen to another patient, whether it is the fault of the patient or of the "doctor," (and I use that term loosely).
All in all, just remember, what you have read, as detailed as it may seem, is truly only a tiny glimpse into everything that this poor girl and her family went through. I can assure you of that. What you do with that is up to you. You are completely entitled to carry on with your opinion that these are a bunch of idiots who were too stupid to "seek a second opinion," but I can assure you with absolute sincerity, that you would be incorrect.
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Anon 05/09/2011 1:42:00 AM
LLMDs are conducting experiments on their patients using unproven and expensive treatment protocols without explaining to their patients that they are part of an office-based 'research' study. Patients are being charged large sums of money to participate unknowingly in these experiments.
One example is the Cowden Protocol being heavily marketed to chronically ill patients. Read the presentation by Dr. Richard Horowitz, former long-term President of the ILADEF, the ILADS Education Foundation and one of the founders of ILADS.
http://www.ilads.org/files/compendium07/Horowitz.pdf
Dr. Horowitz explains that he conducted studies of the Cowden Protocol on patients at his clinical practice, which is not a medical research facility. In his presentation he explains that after Nutramedix sent him samples for 30 patients he "enrolled" 170 patients in a "study" to try their Cowden Protocol. The full Cowden Protocol along with the usual supplements he (markets) sells for almost $500. 170 patients at $500 each for a six-month 'study' rakes in an additional $85,000 in addition to his office visit and other fees. Sweet!
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lyme4u 05/09/2011 1:12:00 AM
BTW Janet Love is listed on the LIA website when you click on "Find a Lyme/autism Doctor" http://www.lymeinducedautism.com/findalymeautismdoctor.html
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lyme4u 05/09/2011 1:09:00 AM
Lymeland is also infamous for telling people who have serious diseases such as ALS or autism that they probably really are Lyme disease 'victims'.
For example, the Lyme-induced Autism (LIA) Foundation http://www.lymeinducedautism.com/home.html right up front they say "up to 90%" of children with autism coud have Lyme. Explore that website to see what kind of 'help' people are directed towards.
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Anon 05/09/2011 12:16:00 AM
The comments on Lymenet.org are highly censored. The LLMDs are protected by their patients more than in any other field of medicine. The patients and activists would sooner allow one of their fellow patients (friends) to die from a drug overdose than speak out against their coveted LLMDs. And, when patients die from their medical mistreatment, the patients publish their death as if it were from Lyme disease.
On other internet forums, such as the Yahoo groups created by LDA and CALDA and probably also on Lymenet, wives of the LLMDs post messages promoting the LLMD services of their physician husband. The problem with this is that other patients reading these wonderful comments think they are being posted by other patients. This is another way these unethical medical 'doctors' reel in their victims.
On other patient support forums, the LLMDs, LL-Nurses and LL-psychologists post promoting their own services and products. These providers are predators.
Other LLMDs, such as Raphael Stricker have been found guilty of falsifying research studies: http://www.forbes.com/forbes/2007/0312/096.html
It is true that many of these LLMDs are under investigation by their Medical Boards. The LLMDs claim they are being persecuted solely for prescribing antibiotics. The court records and testimony evidence that these LLMDs are being investigated for serious acts of medical misconduct and patient endangerment. There is NO conspiracy, except to reel in vulnerable unsuspecting patients, force-feed them full of misinformation and lies, then convince them that they are being helped by such unethical and dangerous treatments.
Read http://relative-risk.blogspot.com . The blogger may be a bit sarcastic, but check out his/her allegations elsewhere - they are all true. The LLMDs are running of the biggest medical scams in history.
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lyme4u 05/08/2011 11:39:00 PM
No, this is not a misleading and biased article.
Lymeland is populated by practitioners who put patients on many antibiotics and other drugs and supplements at the same time. And if the patient gets worse, they are told that they are "Herxing". Go to this popular on-line group http://flash.lymenet.org/scripts/ultimatebb.cgi and read the kind of things patients go through and are encouraged to try.
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lyme4u 05/08/2011 11:15:00 PM
There is a book by 13 Lyme literate MD's. Just read about the type of people who are suposedly literate on this page http://www.lymebook.com/insights-lyme-treatment-strasheim-book Think about what kind of medicine desperate patients are shoved towards.
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Anon 05/08/2011 9:49:00 PM
The expression "conspiracy theory" is correct. There are leading LLMDs that perpetuate the belief that the Lyme epidemic is a result of a government operation gone awry and there is an active government conspiracy to refuse medical care and treatment to ill patients allegedly known to be infected.
These are not "fringe" practices that perpetuate the conspiracy theory. These are the founding leaders of the Lyme groups, ILADS and CALDA and others. They are considered fringe among mainstream medicine, but not within the chronic Lyme disease arena.
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cr0sh 05/08/2011 9:49:00 PM
Don't get me wrong; I have no problem with an herb or other medicine that has true efficacy as revealed by double-blind studies. I understand that many modern (and not-so-modern) medicines derive from plants and other sources. That doesn't mean, though, that the placebo effect isn't a powerful thing, and that some of these items either don't really work, or in fact might cause harm if taken incorrectly or without proper supervision.
I'm just disturbed by this apparent shift by the market for medical care to trend to unsupported woo instead of real medicine backed by scientific understanding. If someone wants to harm themselves based on woo, so be it - but to force me by attrition (or other reasons) to only be able to find a doctor who peddles woo instead of real science, that's something that affects my health and choice, and this I won't abide.
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Tpark 05/08/2011 8:19:00 PM
I definitely want to preface with my take that the article effectively communicates the feelings of the patient Alyssa Goodale. It indeed does seem to communicate a doctor patient relationship gone awry. I feel horrible that she went through what she went through. After reading the whole article I am full of compassion for her experience. That said, I cannot with clear conscience let that color my whole perception of the information contained within the article. There are some problems with it. I do think that hers is an example of a very problematic doctor patient relationship that has crossed professional boundaries. Yet I would caution against connecting this type of poor relationship primarily with non-conventional practice alone. Abuse does happen within the medical community as well, and it is a shame that this article does not differentiate between good and bad doctor practices period. Instead it can be inferred that all alternative medical practices are illegitimate.
This is a misleadingly biased article. Let's start with the problematics of this phrase:
"Such single-mindedness blurs critical thinking that is central to the proper care of any patient. Naturally, that process has an acronym — WYLFIWYF, which stands for "what you look for is what you find." Remnant Health Center looks for and finds Lyme disease."
Sure. Yet with this logic one must include any other number of specialties in medicine. Are they too merely looking for and finding disease? Such as Cardiac specialists, Endocrinologists, Neurologists, and the numerous other specialties in medicine. This is poor, misleading logic.
Not that these practices don't sound fishy to me personally. Here I do not intend to insult alternative medicine as a practice, so I will say that fishy should be supported with the justification that alternative medicine should not masquerade as conventional medicine, because it plainly is not. Yet as a journalist it should be ethically asked, is covering a potentially exceptional representation of misdiagnosis doing more harm for a potentially larger community of ill individuals than good? The bias in this article is that this person is justifying their spin by stretching their areas of research into areas they have clearly have not by making very opinionated generalizations such as:
"Some Lyme-ites cling to wispy theories of a lingering U.S. government/big-insurance-company conspiracy against the masses."
You cannot generalize "some" as representative of what does amount to a large complex group of individuals. Yet that is what is being done with the bias-colored description "Wispy theories" of some "Lyme-ites". This translates easily to readers as ALL "Lyme-ites". Especially to those "Lyme-ites" (who have now all become shoehorned into a stereotype) that prescribe to an arguably justified belief that there is something fishy going on politically with Lyme disease. This justifiable belief does not necessarily stretch into the territory of "conspiracy theory" yet by the author's communication it does translate readily. Not to mention that the phrase "conspiracy theory" is loaded with social stigma. This is an unfair stigma to attach to many who may use this term simply because they are lacking in vocabulary that more efficiently describes founded and very real political trends. To label this description of unfair representation in medical practice as "conspiracy theory" is framing a subject with bias before the discussion has even begun. As such it is very misleading. Indeed this sort of framing is a favored theme of the author.
Further, it is disingenuous to extend association of practices that are so fringe they could not be identified as part of the conventional medical community, to a much larger group of practitioners that are indeed practicing medicine by the books with legitimate, medically founded arguments to established medical paradigms. This is what the practice of science is about, testing theories against human error, of which the medical community is not exempt from, including medical "authority" figures. This is another term that I take issue with by its use in the article. The maligned doctors in the article are described as:
"convinced it is far more ubiquitous than those in authority are letting on."
What, may I ask is the author suggesting by "those in authority"? I feel the need to remind the author that authority is a social structure defined by those in positions of social and political power. Authority does not suggest lack of human error. It is not above the realm of science or even our fine culturally idealized medicine to be subject to the human fault of power and politics. That is why we have attempted elaborate systems of checks and balances within politics and medicine. This system is not without loopholes, and it can and should be questioned. If it stands up in the face of such a process then that is a good indicator of its validity.
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Anon 05/08/2011 6:57:00 PM
Lyme4u -
My guess is that you and I know there are other doctors called LLMDs, Lyme-literate Medical Doctors, that do these same things. Most of these doctors seem to be associated with an organization named ILADS, which is backed by various alleged patient support groups such as CALDA, LDA and others across the country. The many problems with our medical care system feed into their movement and seem to be helping it advance.
Patients are not being treated adequately and appropriately by mainstream doctors and are pushed toward these practices out of desperation. We have a dysfunctional medical care system that has failed to police itself.
Although this was a well-written article and brought attention to this particular exploitative medical practice, there are many practices where medical doctors, licensed MD's, practice equally dangerous and unethical treatment protocols. Alternative and natural medicine is one thing, outright medical fraud, malpractice, and patient endangerment is different.
Many chronically ill patients, especially Lyme patients, seem to have become the prey of these doctors and their activists. There is such a convoluted medical mess going on behind the scenes with these Lyme specialty practices that I can only hope that are some really good federal investigators out there working on stopping this mess. I'm not holding my breath. Where there is a will, there is a way.
Con artists will reinvent their game as long as they are able to find victims. Some of the energy medicine tools listed in this article go by other names, such as ZYTO and other devices. These practitioners hide behind their activists and support groups. It has become a cult-like movement.
People that are ill, afraid and in pain are too easily exploited. Whose responsibility is it to look after and protect these vulnerable members of society?
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lyme4u 05/08/2011 5:14:00 PM
The Public Health Alert http://www.publichealthalert.org/ (which interviewed Love) is the first item on the informative links for Lyme patients http://remnanthealth.com/lyme_links.php
Does anyone wonder that there aren't other "doctors' who do similiar things?
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05/08/2011 12:59:00 PM
Take two thorazine and call us in the morning if your symptoms don't improve.
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05/08/2011 12:58:00 PM
Nothing wrong with herbs - many of our medicines originally derived from them. I use them often, to manage colds and flu, and expedite healing of soft tissue injuries.
Where I live, allopathic medical care has long been outside the reach of many for financial reasons, and many still seek the services of yerberos and even parteras.
These "Love Clinic" people are predatory quacks. But allopathic medicine as practiced in this country has a depressing similarity - bad science driven by the lust for filthy lucre. There is a common cure; we should, as many first world countries have done, take the profit out of medical care.
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Lujlp 05/08/2011 9:33:00 AM
Yea I said the naturopath, which is a vital energy level specalist, is just a big a quack as Dr nurse - never said real doctors were quacks
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cr0sh 05/08/2011 7:39:00 AM
The problem is there are tons more gullible people from where these came from. In fact, you can catch most of them tomorrow morning if you know where to look...
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cr0sh 05/08/2011 7:38:00 AM
"If it helps any, the patient is hot as hell."
I doubt it does - that was rather misogynistic and condescending as well...
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cr0sh 05/08/2011 7:36:00 AM
"Can anyone SERIOISLY believe these crazy evil woman?They tried to take EVERYTHING from Alyssa so all she had to focus on was how she was sick."
These women aren't evil, nor does hell exist (and if it did, any entity culpable in its creation would be a monstrous psychopath hardly worthy of adoration). They are simply peddling an alternate form of woo from that which you currently believe.
No more, no less.
...also, the fact that you are smiling at the thought of infinite torture for finite acts (and being) doesn't paint you in a good nor rational light, my dear. Not in the least.
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cr0sh 05/08/2011 7:32:00 AM
You also mentioned "God in heven (sic)" - as if that is any less of woo than then other...? Unfortunately, both hold as much water as a sieve.
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cr0sh 05/08/2011 7:29:00 AM
"Clearly, with their crazy machines and slew of drug cocktails that you must buy FROM THEM, this is a major racketeering business. They have perfected their selling techniques, and the ability to soothe patients and tell them what they want, or think they need, to hear."
Woomeisters don't need to have that great of selling techniques; most of the techniques can be gleaned from simply stepping into a church on a Sunday...